From the  very beginning we chosen to document our journey with Lillian and ARPKD. We’ve written about hospital visits, labs, medications. We’ve celebrated milestones and cried over setbacks. Our blog has been a safe place for us. We can write about our pain and worry, excitement and pride. We plan to continue blogging about our journey here, however, if your curious about the rollercoaster before today, you can find all of our past blog post on the link below.

https://hopeforlilliangrace.blogspot.com/